Copyright © 2003 The Diabetes Insipidus Foundation, Inc.

 

The Diabetes Insipidus Foundation, Inc. is an IRS-recognized 501.c.3 non-profit organization that provides education, information and support to patients, their families and friends, researchers, physicians and other health care providers, and anyone interested in any form of Diabetes Insipidus on a global level.

Please take a few minutes to fill out this survey. There is no coding on this survey to indicate your identity and any personal information you provide is optional. Completing this survey will assist DiF to provide the most helpful information and services to its members.

  1. What form of diabetes insipidus (DI) do you or your family member have?

  2. How long since you or your family member were diagnosed with DI?

  3. If you or your family member do not have DI, you are interested in DI as a/an:

    If you selected other, please specify:

  4. If you or your family member has DI, what is your primary source for information about DI? (Check one)

    If you selected other, please specify:

  5. If you or your family member has DI, what are your secondary sources for information about DI? (Check all that apply)

    
Primary care physician/pediatrician       
DiF's Web Site                            
Other people with DI                      
Other internet web sites                
Online chat forums (e.g. www.yahoogroups.com)  
Specialist                                     
Endless Water Newsletter                                
Other

    If you selected other, please specify:

  6. How did you learn about Diabetes Insipidus Foundation (DiF)? (Check all that apply)

    
Internet search
Friend
Yahoo or other online support group  
Relative                           
Physician/specialist                 
Other source

    If you selected other, please specify:

  7. How long have you been a member of DiF? (DiF was founded in 1996)

  8. Endless Water (EW) is DiF’s newsletter. If you have read previous editions of EW, please prioritize (1 highest, 7 lowest) your desired features in EW:

    
 Message from the Editor
 Message from DiF President
 Food & Recipes
 Personal stories/patient supported articles
 Letters/emails from other countries
 Doctor Robertson Responds
 Scientific articles
 Have not read EW (Enter a "Y" if you have not read EW)

  9. With whom do you share EW? (check all that apply)

    
Relatives                         
Teacher/school staff              
Physician/specialists             
Child-care providers            
Friends                           
Co-workers                        
Other health care providers                                 
N/A; Do not share EW with others 
Other

    If you selected other, please specify:

  10. DiF is considering creating a members only section to its website. This section would be included with the price of DiF membership. It would include current and back issues of EW. Would you join DiF to be part of a members only section and read EW if it were available online at our website?


  11. If EW is made available online, would you still want to receive a printed copy?

  12. Which services are most important for DiF to provide? (Please prioritize: 1 most important, 12 least important)

    
 Publish newsletter (Endless Water)
 Annual or Biannual Members Conference
 Maintain internet site for general public
 Create/maintain a members only section
 Facilitate interaction with other members on-line
 Resource for medical professionals
 Informacion En Espanol or Francais
 Scientific advisory panel
 Ask a DI-Related Question via e-mail
 Facilitate start-up support groups/chapters of DiF
 Links to existing support groups
 Links to latest scientific research about DI
 Other

    If you selected other, please specify:

  13. How often do you visit DiF’s Web site? (check one)

  14. Have you previously attended DiF’s annual members’ conference?

  15. Would you be interested in attending members conferences in the future?

  16. DiF is a volunteer run organization. Are you interested in volunteering your time/efforts for DiF?

  17. If you are interested in volunteering with DiF or have any survey related comments/questions you would like responsed to, please provide the following contact information (this information is appreciated and optional):
    (By submitting your personal information, please be aware that this is an unsecured/non-private transmission. DiF does not sell nor share your private  information.)

    Name
    Street Address
    Street Address 2
    City
    State/Province
    Zip/Postal Code
    Country
    Home Phone
    E-mail
    Comments

Last Updated January 2008

The use of this web site is not a substitute for medical, legal, or other professional services. Consult a competent professional for answers to your specific questions.

Contact The Diabetes Insipidus Foundation, Inc. with questions about our foundation.

It is with great honor and heart-felt gratitude that we thank
Marie-Pierre Sokal and the citizens of Brussels, Belgium for allowing us to use their
"little Manneke Pis".